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O presente relatório de prática clínica surge no âmbito do 11.º Mestrado em Cuidados Paliativos (MMCP) da Escola Superior Dr. Lopes Dias (ESALD) do Instituto Politécnico de Castelo Branco (IPCB), tendo como finalidade a análise crítica sobre as competências adquiridas na área de Cuidados Paliativos (CP) e a realização de um projeto de intervenção sobre CP e qualidade de vida em pessoas com demência avançada.
A componente de investigação integra uma revisão sistemática da literatura que procurou identificar a evidência existente sobre os efeitos dos CP na qualidade de vida das pessoas com demência avançada.. A pesquisa seguiu o modelo Preferred Reporting Items for Systematic Reviews and Meta-Analysis (PRISMA) e o método do Instituto Joana Briggs (IBJ), incluindo artigos publicados entre 2015 e 2025, nas bases de dados PubMed, Web of Science e Scopus. Após a análise e uma seleção criteriosa, foram incluídos seis estudos primários de diferentes contextos clínicos. Os resultados demonstram uma associação positiva entre a intervenção das equipas especializadas de CP e a melhoria da qualidade de vida das pessoas com demência avançada. A abordagem multi e interdisciplinar e centrada na pessoa e na família destacou-se como elemento essencial para a humanização dos cuidados e o respeitos pelas preferências individuais de fim de vida. Apesar das limitações identificadas, a evidência disponível sustenta o papel crucial dos CP na melhoria da qualidade de vida, conforto r dignidade das pessoas com demência avançada. Conclui-se que a integração precoce e sistemática dos CP na trajetória da doença constitui uma estratégia essencial para a prestação de cuidados de saúde mais humanizados e centrados na pessoa.
Abstract: This clinical practice report was developed within the scope of the 11th Master's Degree in Palliative Care (MCP) at the Dr. Lopes Dias School of Health (ESALD), Polytechnic Institute of Castelo Branco (IPCB). Its purpose is to provide a critical reflection of the competencies acquired in the field of Palliative Care (PC) and to presente an intervention project on palliative acre and quality of life in people with advanced dementia. The research component consists of a systematic literature review aimed at identifying the available evidence regarding the effects of palliative care on the quality of life of people with advanced dementia. The review followed the Preferred Reporting Items for Systematic Reviews and Meta-Analysis (PRISMA) guidelines and the Joana Briggs Institute (IBJ) methodology, including articles published between 2015 and 2025 retrieved from the PubMed, Web of Science, and Scopus databases. Following a rigorous screening and selection process, six primary studies conducted in different clinical settings were included. The findings demonstrate a positive association between the involvement of specialised palliative care teams and improvements in the quality of life of people with advanced dementia. A multidisciplinary and interdisciplinary person- and family-centred approach, emerged as a key element in promoting the humanisation of care and respecting individual end-of-life preferences. Despite the identified limitations, the available evidence supports the crucial role of palliative care in improving the quality of life, comfort, and dignity of people with advanced dementia. It is concluded that the early and systematic integration of palliative care throughout the disease trajectory constitutes an essential strategy for delivering more humane, person-centred healthcare.
Abstract: This clinical practice report was developed within the scope of the 11th Master's Degree in Palliative Care (MCP) at the Dr. Lopes Dias School of Health (ESALD), Polytechnic Institute of Castelo Branco (IPCB). Its purpose is to provide a critical reflection of the competencies acquired in the field of Palliative Care (PC) and to presente an intervention project on palliative acre and quality of life in people with advanced dementia. The research component consists of a systematic literature review aimed at identifying the available evidence regarding the effects of palliative care on the quality of life of people with advanced dementia. The review followed the Preferred Reporting Items for Systematic Reviews and Meta-Analysis (PRISMA) guidelines and the Joana Briggs Institute (IBJ) methodology, including articles published between 2015 and 2025 retrieved from the PubMed, Web of Science, and Scopus databases. Following a rigorous screening and selection process, six primary studies conducted in different clinical settings were included. The findings demonstrate a positive association between the involvement of specialised palliative care teams and improvements in the quality of life of people with advanced dementia. A multidisciplinary and interdisciplinary person- and family-centred approach, emerged as a key element in promoting the humanisation of care and respecting individual end-of-life preferences. Despite the identified limitations, the available evidence supports the crucial role of palliative care in improving the quality of life, comfort, and dignity of people with advanced dementia. It is concluded that the early and systematic integration of palliative care throughout the disease trajectory constitutes an essential strategy for delivering more humane, person-centred healthcare.
Descrição
Relatório de estágio apresentado à Escola Superior de Saúde Dr. Lopes Dias do Instituto Politécnico de Castelo Branco para cumprimento dos requisitos necessários à obtenção do grau de Mestre em Cuidados Paliativos.
Palavras-chave
Cuidados paliativos Demência avançada Qualidade de vida Família Palliativa care Advanced dementia Quality of life Family