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Publication
Morrer no domicílio: necessidades sentidas pelo familiar cuidador
| Name: | Description: | Size: | Format: | |
|---|---|---|---|---|
| 16.09 MB | Adobe PDF |
Advisor(s)
Abstract(s)
O presente relatório de prática clínica tem como finalidade dar cumprimento aos
requisitados fundamentais à obtenção do grau de Mestre em Cuidados Paliativos,
surge no âmbito do 6º Mestrado em Cuidados Paliativos da Escola Superior de Saúde
Dr. Lopes Dias (ESALD) do Instituto Politécnico de Castelo Branco (IPCB).
Redação e descrição de forma reflexiva e critica apoiado na evidência científica,
das atividades desenvolvidas durante a minha prática clínica na UCP, de modo, a
atingir os objetivos definidos e adquirir competências. O documento encontra-se
estruturado nas seguintes partes: contextualização da prática clínica, reflexão crítica
da aquisição de objetivos e competências organizados segundo os pilares dos
cuidados paliativos, apresentação e implementação do projeto de intervenção e
exposição da revisão sistemática da literatura.
A evidência internacional demonstra que a maioria das pessoas prefere ser
cuidada e morrer em casa. Em Portugal segundo um estudo desenvolvido por Gomes,
Sarmento, Ferreira, et al. (2013) mostra que o local de morte preferido para 51,2%
das pessoas é a casa. Mas, cuidar de um doente em fase terminal acarreta uma
sobrecarga familiar, além de todas as dificuldades de ordem socio emocional,
conduzindo ao desgaste físico (Silva, Trindade, Paixão, et al., 2018). Dado que as
famílias não sejam devidamente preparadas e ajudadas, não vão conseguir ir ao
encontro dos desejos do seu ente querido, é importante os profissionais de saúde
capacitar estes cuidadores (Bee, Barnes & Luker, 2007). Neste sentido é necessário
avaliar as necessidades do familiar cuidador, delineando estratégias para lidar com a
doença e o processo que lhe está subjacente, percebendo as necessidades dos doentes
e das suas famílias e atuando, através de uma intervenção técnica, rigorosa e ativa, no
sentido de dar resposta ao sofrimento inerente (Neto, 2016).
As conferências familiares oferecem uma oportunidade, de cuidado focado no
doente e orientado para a família. É uma intervenção clínica valiosa no contexto dos
cuidados em fim-de-vida e tem um impacto positivo na experiência de todos os
participantes envolvidos. (Fineberg, Kawashima, & Asch, 2011).
O projeto de intervenção é baseado numa proposta de melhoria contínua apoiado
no indicador de qualidade das conferências familiares e na identificação das
necessidades alteradas do familiar cuidador, para a redação de um plano de
intervenção.
ABSTRACT: The purpose of this clinical practice report is to comply with the fundamental requirements for obtaining the master's degree in palliative care, as part of the 6th Master's degree in palliative care at the Superior School of Health Dr. Lopes Dias (ESALD) of the Polytechnic Institute of Castelo Branco (IPCB). Writing and describing in a reflexive and critical manner supported by scientific evidence, of the activities developed during my clinical practice at the UCP, to achieve the defined objectives and acquire competencies. The document is structured in the following parts: contextualization of clinical practice, critical reflection of the acquisition of objectives and competencies organized according to the pillars of palliative care, presentation and implementation of the project of Intervention and exposure of the systematic review of the literature. The international evidence shows that most people prefer to be cared for and die at home. In Portugal, according to a study developed by Gomes, Sarmento, Ferreira, et al. (2013) shows that the preferred place of death for 51.2% of people is home. But caring for a terminally ill patient carries a family overload, in addition to all the difficulties of socio-emotional order, leading to physical exhaustion (Silva, Trindade, Paixão, et al., 2018). Since families are not properly prepared and helped, they will not be able to meet the desires of their loved ones, it is important for health professionals to empower these caregivers (Bee, Barnes & Luker, 2007). In this sense, it is necessary to evaluate the needs of the family caregiver, outlining strategies to deal with the disease and the underlying process, perceiving the needs of patients and their families and acting, through a technical intervention, Rigorous and active, in order to respond to the inherent suffering (Neto, 2016). Family conferences offer an opportunity, patient-focused care and familyoriented. It is a valuable clinical intervention in the context of end-of-life care and has a positive impact on the experience of all the participants involved. (Fineberg, Kawashima, & Asch, 2011). The intervention project is based on a proposal for continuous improvement supported by the quality indicator of family conferences and the identification of the altered needs of the family caregiver, for the drafting of an intervention plan.
ABSTRACT: The purpose of this clinical practice report is to comply with the fundamental requirements for obtaining the master's degree in palliative care, as part of the 6th Master's degree in palliative care at the Superior School of Health Dr. Lopes Dias (ESALD) of the Polytechnic Institute of Castelo Branco (IPCB). Writing and describing in a reflexive and critical manner supported by scientific evidence, of the activities developed during my clinical practice at the UCP, to achieve the defined objectives and acquire competencies. The document is structured in the following parts: contextualization of clinical practice, critical reflection of the acquisition of objectives and competencies organized according to the pillars of palliative care, presentation and implementation of the project of Intervention and exposure of the systematic review of the literature. The international evidence shows that most people prefer to be cared for and die at home. In Portugal, according to a study developed by Gomes, Sarmento, Ferreira, et al. (2013) shows that the preferred place of death for 51.2% of people is home. But caring for a terminally ill patient carries a family overload, in addition to all the difficulties of socio-emotional order, leading to physical exhaustion (Silva, Trindade, Paixão, et al., 2018). Since families are not properly prepared and helped, they will not be able to meet the desires of their loved ones, it is important for health professionals to empower these caregivers (Bee, Barnes & Luker, 2007). In this sense, it is necessary to evaluate the needs of the family caregiver, outlining strategies to deal with the disease and the underlying process, perceiving the needs of patients and their families and acting, through a technical intervention, Rigorous and active, in order to respond to the inherent suffering (Neto, 2016). Family conferences offer an opportunity, patient-focused care and familyoriented. It is a valuable clinical intervention in the context of end-of-life care and has a positive impact on the experience of all the participants involved. (Fineberg, Kawashima, & Asch, 2011). The intervention project is based on a proposal for continuous improvement supported by the quality indicator of family conferences and the identification of the altered needs of the family caregiver, for the drafting of an intervention plan.
Description
Relatório de Estágio apresentado à Escola Superior de Saúde Dr. Lopes Dias, do Instituto Politécnico
de Castelo Branco para cumprimento dos requisitos necessários à obtenção do grau de Mestre em
Cuidados Paliativos.
Keywords
Cuidados paliativos Prática clínica Unidade de cuidados paliativos Necessidades do familiar cuidador Conferência familiar Palliative care clinical practice palliative care unit family caregiver needs family conference