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Dificuldades vivenciadas pelos familiares nos Ășltimos dias e horas de vida
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Abstract(s)
O relatĂłrio tem como objetivo a descrição e reflexĂŁo das atividades realizadas para atingir os objetivos e competĂȘncias propostos para a Unidade Curricular de PrĂĄtica ClĂnica do Mestrado em Cuidados Paliativos da Escola Superior de SaĂșde Dr. Lopes Dias. A PrĂĄtica ClĂnica compreendeu um total de 300 horas realizadas numa Unidade de Cuidados Paliativos, em contexto de internamento hospitalar. Para a realização da PrĂĄtica ClĂnica, optei por uma Unidade de Cuidados Paliativos, que assegura aos doentes em situação de fim de vida melhor qualidade de vida e Ă s suas famĂlias, que enfrentam uma situação de ameaça Ă vida, atravĂ©s da prevenção e alĂvio do sofrimento. Esta foi uma escolha muito refletida e que se enquadrou com a ĂĄrea temĂĄtica a aprofundar â Dificuldades vivenciadas pelos familiares nos Ășltimos dias e horas de vida. Durante a prĂĄtica clĂnica, planei, executei e avaliei os planos de cuidados estabelecidos e dirigidos aos doentes que acompanhei, utilizando os conhecimentos teĂłrico-prĂĄticos adquiridos ao longo do Mestrado. Ao nĂvel do projeto de intervenção na Unidade de Cuidados Paliativos, desenvolvi um estudo descritivo, que consistiu na realização de entrevistas a 14 familiares de doentes em fim de vida acerca das suas dificuldades vivenciadas nos Ășltimos dias e horas de vida do seu familiar, cujos resultados revelaram que as dificuldades vivenciadas nos Ășltimos dias e horas de vida mais evidentes foram o confronto com a morte, a prestação de cuidados, a gestĂŁo de sentimentos, o envolvimento emocional (revolta), aceitar a doença e a impossibilidade de cura e enfrentar o sofrimento do doente. Quanto aos medos vivenciados nos Ășltimos dias e horas de vida, os entrevistados, na maioria, relataram o prolongamento do sofrimento, receber a mĂĄ notĂcia e o familiar morrer em sofrimento, sem tranquilidade. Estes resultados foram posteriormente apresentados como forma de dar visibilidade Ă s açÔes praticadas e permitir a reflexĂŁo por parte dos profissionais de saĂșde sobre o tema. Elaborei um documento em suporte de papel â Dossier Informativo â com instruçÔes Ășteis sobe como ajudar pessoas que estĂŁo em processo de luto.
ABSTRACT: The purpose of the report is to describe and reflect on the activities carried out to achieve the objectives and competencies proposed for the Clinical Practice Course of the Master Degree in Palliative Care of the Dr. Lopes Dias High School of Health. The Clinical Practice comprised a total of 300 hours in a Palliative Care Unit, in a hospital setting. In order to carry out the Clinical Practice, I opted for a Palliative Care Unit, which assures end-of-life patients better quality of life and their families facing a life threatening situation through the prevention and relief of suffering. This was a much reflected choice and that was framed with the thematic area to deepen - Difficulties experienced by family members in the last days and hours of life. During the clinical practice, I planned, performed and evaluated the care plans established and addressed to the patients I followed, using the theoretical and practical knowledge acquired during the Masters. At the level of the intervention project at the Palliative Care Unit, I developed a descriptive study that consisted of interviews with 14 relatives of end-of-life patients about their difficulties experienced in the last days and hours of life of their relative, whose results revealed that the difficulties experienced in the last days and hours of life more evident were confrontation with death, care, feelings management, emotional involvement (revolt), accepting illness and the impossibility of healing and facing suffering of the patient. As for the fears experienced in the last days and hours of life, most interviewees reported prolonging suffering, receiving the bad news and the family member dying in suffering, without reassurance. These results were later presented as a way to give visibility to the actions practiced and allow the reflection of the health professionals on the subject. I wrote a paper document - Information Dossier - with useful instructions on helping people who are in the process of mourning.
ABSTRACT: The purpose of the report is to describe and reflect on the activities carried out to achieve the objectives and competencies proposed for the Clinical Practice Course of the Master Degree in Palliative Care of the Dr. Lopes Dias High School of Health. The Clinical Practice comprised a total of 300 hours in a Palliative Care Unit, in a hospital setting. In order to carry out the Clinical Practice, I opted for a Palliative Care Unit, which assures end-of-life patients better quality of life and their families facing a life threatening situation through the prevention and relief of suffering. This was a much reflected choice and that was framed with the thematic area to deepen - Difficulties experienced by family members in the last days and hours of life. During the clinical practice, I planned, performed and evaluated the care plans established and addressed to the patients I followed, using the theoretical and practical knowledge acquired during the Masters. At the level of the intervention project at the Palliative Care Unit, I developed a descriptive study that consisted of interviews with 14 relatives of end-of-life patients about their difficulties experienced in the last days and hours of life of their relative, whose results revealed that the difficulties experienced in the last days and hours of life more evident were confrontation with death, care, feelings management, emotional involvement (revolt), accepting illness and the impossibility of healing and facing suffering of the patient. As for the fears experienced in the last days and hours of life, most interviewees reported prolonging suffering, receiving the bad news and the family member dying in suffering, without reassurance. These results were later presented as a way to give visibility to the actions practiced and allow the reflection of the health professionals on the subject. I wrote a paper document - Information Dossier - with useful instructions on helping people who are in the process of mourning.
Description
RelatĂłrio de PrĂĄtica ClĂnica apresentado Ă Escola Superior de SaĂșde Dr. Lopes Dias do Instituto PolitĂ©cnico de Castelo Branco para cumprimento dos requisitos necessĂĄrios Ă obtenção do grau de Mestre em Cuidados Paliativos, realizado sob a orientação cientĂfica da Doutora Ăngela Sofia Lopes SimĂ”es.
Keywords
PrĂĄtica clĂnica Cuidados paliativos Dificuldades vivenciadas Familiares Ăltimos dias e horas de vida Clinical practice Palliative care Difficulties experienced family members Last days and hours of life