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Publication
Custo direto dos cuidados ao doente em fim de vida, no domicílio, para o agregado familiar
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Advisor(s)
Abstract(s)
O presente relatório foi desenvolvido no âmbito da frequência do 2º ano do 7º
Mestrado em Cuidados Paliativos da Escola Superior de Saúde Dr. Lopes Dias do
Instituto Politécnico de Castelo Branco, tendo como objetivo a obtenção do grau de
Mestre. Encontra-se dividido em três partes.
A primeira parte incide sobre a caracterização do estágio de 300h realizado
numa Equipa de Cuidados Paliativos da Região Norte, pretende também descrever as
diferentes áreas de competência previstas para este estágio. De forma a ilustrar melhor
as situações, foram usados casos clínicos para cada uma das competências. Foram
escolhidos casos que criaram dúvidas, que foram levados a discussão clínica ou que
marcaram o meu percurso clínico.
A segunda parte do relatório trata-se de uma revisão sistemática da literatura
sobre “O custo e o custo eficácia das equipas de cuidados paliativos domiciliários”, um
tema pouco desenvolvido e com pouca informação disponível, como demonstrado pela
nossa pesquisa.
A terceira parte do relatório versa sobre o trabalho de Investigação “Custo
direto dos cuidados do doente paliativo em fim de vida no domicílio para o agregado
familiar”, que pretendeu caracterizar os custos diretos dos doentes em fim de vida nas
famílias acompanhadas por CP no domicílio. Verificou-se que os dados foram
insuficientes para se registarem diferenças com significado estatístico, no entanto foi
percetível além do desgaste emocional, o grande esforço financeiro que as famílias
fazem para os seus familiares nessa fase da vida. Constatou-se ainda uma grande lacuna
no conhecimento sobre os gastos das famílias e quais as medidas de apoio necessárias
na ajuda financeira, sendo no necessário no futuro mais investigação nesta área.
This report was developed as part of the attendance to the 2nd year of the 7th Master in Palliative Care at the Escola Superior Lopes Dias of the Instituto Politécnico de Castelo Branco, with the aim of obtaining the Master’s degree. It is divided in three parts. The first part focuses on the characterization of the 300 hours fellowsheep held in a Palliative Care Team in the Northern Region, it also aims to describe the different areas of competence envisaged for this fellowship. In order to better illustrate the situations, clinical cases were used for each competency. Cases were chosen that created doubts, that were taken to clinical discussion or that marked my clinical path. The second part of the record is a systemic review of the literature on “The cost and cost effectiveness of home palliative care teams”, a poorly developed subject with little information available, as our research has shown. The third part of report deals with the research work “Direct cost of care of patients in end of live at home for the caregivers”, which aimed to characterize the direct costs of end of live patients in families accompanied by PC at home. It was found that the data were insufficient to record statistically significant differences, however it was noticeable beyond the emotional wear and tear, the great financial effort that families make for their relatives at this stage of life. And that there is a big gap in the knowledge about the families expenses and what support measures are necessary to get financial aid.
This report was developed as part of the attendance to the 2nd year of the 7th Master in Palliative Care at the Escola Superior Lopes Dias of the Instituto Politécnico de Castelo Branco, with the aim of obtaining the Master’s degree. It is divided in three parts. The first part focuses on the characterization of the 300 hours fellowsheep held in a Palliative Care Team in the Northern Region, it also aims to describe the different areas of competence envisaged for this fellowship. In order to better illustrate the situations, clinical cases were used for each competency. Cases were chosen that created doubts, that were taken to clinical discussion or that marked my clinical path. The second part of the record is a systemic review of the literature on “The cost and cost effectiveness of home palliative care teams”, a poorly developed subject with little information available, as our research has shown. The third part of report deals with the research work “Direct cost of care of patients in end of live at home for the caregivers”, which aimed to characterize the direct costs of end of live patients in families accompanied by PC at home. It was found that the data were insufficient to record statistically significant differences, however it was noticeable beyond the emotional wear and tear, the great financial effort that families make for their relatives at this stage of life. And that there is a big gap in the knowledge about the families expenses and what support measures are necessary to get financial aid.
Description
Relatório de Prática Clínica apresentado à Escola Superior de Saúde Dr. Lopes Dias, do
Instituto Politécnico de Castelo Branco, para cumprimento dos requisitos necessários
à obtenção do grau de Mestre em Cuidados Paliativos.
Keywords
Cuidados paliativos Custo de cuidar em fim de vida no domicílio Cuidadores Palliative care Costs at end of life at home Caregivers